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| Blogs > purpletrashcan > Play With Purpletrashcan |
Are You Kidding?
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Are You Kidding? I just received my medical records after someone on the support group website I joined suggested I request them. I had complained that I don't feel like my doctors keep me as informed as I want them to. What a surprise! My records were FULL of information I knew nothing about. Important things that I can NOT imagine not neing told about. Ater my valve replacement surgery my sternum was closed with the usual wires AND "several" plates. How many is several? What are the plates made of? Is there information on longterm effects? I looked it up online and there was sparse information, saw a few pictures of several different types. They are purported to help with sternal stability in repeat sternotomy patients and this was my second. Why in the heck wouldn't they tell me about this? I am definitely making a call Monday morning to get the scoop. Then I read that I had acute postoperative anemia, left bundle branch block, high degree AV block, atrial fibrillation, sinus tach,second degree AV block Mobitz type 2, and 8 episodes of non-sustained V-Tach. I was told NONE of this.......guess that explains why the nurses freaked out on a few occasions and why the electrophysiologist made so many visits to me prior to determining I needed a pacemaker. Sheesh! They made me look like a bit of an idiot when my cardiologist was explaining that they could see how many episodes of A-Fib I had after reading my pacemaker and I said "What is A-Fib?" I had only been told about ONE type of heart block and that was complete heart block which is why they said I needed the pacemaker. I am so angry I could spit nails! My mother said "maybe they didn't tell you so you wouldn't freak out". I still think they should have told me at least when I was discharged and they had resolved most everything. Don't get me wrong, I think my surgeon/doctors were fantastic brilliant people who took excellent care of me and saved my life. That said, however, I think they NEED to be more informative. How can something like this even happen?  Pull My Fucking Hair!  |
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This is how it happens... Most "civilians" know nothing of electrophysiology of the heart, they know nothing about heart blocks or what causes them and if there are other forms of treatment than having a pacemaker put in. Pacemaker is the easiest and most reliable way to make sure your heart gets the message to beat a sufficient number of times to put blood in your brain. Most blocks cause bradycardia, meaning the heart beats slowly, you don't get enough O2 to the brain and you feel very tired and get dizzy when you get up. There are other types of blocks that are associated with tachycardia but are much less common than the bradys. Ventricular tachycardia is a horse of a different color, if sustained it can kill you, pacemaker or not. So I am sure they put you on a medicine like Amiodorone or something to keep your heart rate low and just let the pacer override the natural pacemakers your heart was born with. Plus, surgeons are the worlds worst at thinking everyone other than them is a dumbass. If there's anyway I can help translate etc, let me know. AbsolutelynormalRN (ACLS, PALS, TNCC)
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12/27/2009 7:23 pm |
bring it to there attenshion purple change doctores sound like he was busy and forgot who he was dealing with and forgot to get a hold of u in my prayers sweet wishing 2010 better year for u           
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Thats a fact!  I am so happy to be around to celebrate this holday with friends and family! Merry Christmas to you as well.Pull My Fucking Hair!
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It's a good thing that you had such great doctors in your time of need. Just think of all the people who left an operating room with surgical tools left in them or the guy who had the wrong leg amputated. Malpractice insurance rates have run many a doctor right out of business. It is little wonder that hospital administrators and insurance companies want their doctors to say as little as possible.  I was so fortunate to have such kind, brilliant, helpful doctors along the way with this..... Pull My Fucking Hair!
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Thanks for the hugs hun.......always welcome Pull My Fucking Hair!
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It certainly does......well, live and learn, eh? I will never have anything done in the future without getting my records afterwards. Pull My Fucking Hair!
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12/20/2009 4:24 pm |
It's a good thing that you had such great doctors in your time of need. Just think of all the people who left an operating room with surgical tools left in them or the guy who had the wrong leg amputated. Malpractice insurance rates have run many a doctor right out of business. It is little wonder that hospital administrators and insurance companies want their doctors to say as little as possible.
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I think people withold information bcause it makes them feel smarter. Dumb huh? LT
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12/18/2009 8:43 am |
Yes, Dear. You would be more comfortable knowing more about your medical condition. I hope you can stay closer to the records and learn. I am not around much lately. trucking hard and getting bored with here once again. I start rec-v'g my Social check in January --depressing. A casino visit is in the works for the first check --right after I make a copy of it before I cash it at the bank. hehe! Golly, will it bounce, you think?? I'm a Real sucker for nipples Originator of the Cock Salad
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Happy to hear your recovery is going well. Don't blame you for being peeved, though. There had to be a reason those docs were holding out on you. Just can't imagine it being a good one. Happy Holidays! John Lee Hooker Recommended: [blog lucyjane78]
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Sometimes I would rather not know. My GP does a good job and keeps me too well informed nowdays. Im glad that you are making a strong recovery luv. Merry Christmas Lofty I hear ya on "no news is good news"......LOL but then again "knowledge is power". Pull My Fucking Hair!
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The important thing is you know now, but it's still no excuse for them. They should have told you. Pull My Fucking Hair!
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The important thing is you know now, but it's still no excuse for them. They should have told you. Stop by my blog and say hello [blog veroxxxfun]
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12/16/2009 10:24 pm |
Sometimes I would rather not know. My GP does a good job and keeps me too well informed nowdays. Im glad that you are making a strong recovery luv. Merry Christmas Lofty Recent post: [post 2369941]
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12/16/2009 12:56 pm |
My brother-in-law is a brilliant Dr. and always thought it best to just be a brilliant Dr. and not bother the patients or their families with the all bits and details, only the results. When his own mother had serious health issues and was left out of the loop so to speak, his attitude toward his own patients changed to be more open and forth coming. He’s nearly human now, but still a brilliant Dr. In addition to looking for personal answers, I’m glad you give credit to those who were there to save your life, thankfully they were able to do so. H. 
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it happens all the time ! it happened when I was really sick a couple of years ago and I am about to blog about what I wasn't told about my back one day this week ! get em girl if you read your patients rights I believe being told everything is in there !!
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12/15/2009 6:57 am |
Next time I go to the hospital, I'll be asking a lot of questions from now on. I guess they don't tell if you don't ask!! At least you're back in good shape again. That's the main thing. Just don't get close to any poweful magnets or you may get stuck to them.
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good for you!!! you have done somehomework and you will get the answeres your looking for glad your doing well my friend...information !!!it is free for the asking !!! go get em   []   Seduce my mind and my body
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12/13/2009 6:57 pm |
Doctors think they know everything so therefore they only need to tell you want they want. I would go in and tell him that you want to know about everything when it comes to your health. How can you make decisions if you don't know everything. Well girl take care. I am doing very well am excited about Christmas. John goes back to court Wed. with the crazy bitch hopefully she will loose her visitation. There last court date will be Jan 16 that finishes divorce, property, alimony, and child support which she hasn't had to pay a dime. Cross your fingers she will move back to Tenn. with her parents and leave us alone. Hope you and your friends have a great Christmas.. Vida Hope everyon'e life is going great. Vida
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It did make snse, she has been so helpful to me with her firsthand knowledge. My opinion is still that they need to be more informative, perhaps tell me exactly what IDoKnowYou said, explain that some rythm issues are occurring but that they are on top of it and will keep me posted. I especially would want to know about the sternal plates as they are permanent. Thanks for the hug!  Pull My Fucking Hair!
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Maybe... this is not the time for you to be worrying about this. For health reasons. Maybe... that's why nothing was said.  Good thought though my friend.Pull My Fucking Hair!
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This happens far more frequently than most people realize. In your case, because of your condition it would have been nice had they been a bit more sharing or at least offered to give you a copy of your records. P.S. Thanks for the hugs  Pull My Fucking Hair!
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What you say sounds logical and makes sense. As soon as I finally came to and they removed the vent I asked what time it was.....they said it was 1:30 a.m. Tuesday. I said "Tuesday?!" "Does my family know this?" (I had my surgery Monday at 7:30 a.m. At that time they explained why I was sedated longer and I remember saying to them "Oh, I doubt I will remember a bit of this". and I didn't. My suggestion would be to go over the IMPORTANT parts at discharge. My discharge was very rushed and short. From now on I will just ask for the records after I have something done, that way there will be no misunderstanding or miscommunication. Then if I don't understand something written on medical jargon I will look it up online and if no info there, ask the doc. Pull My Fucking Hair!
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Wow and oh boy. It good things that you are alive! Also it good thing that you find out more detail information about your health which is good time to ask your doctor to see if those are true and explain it. I personal feel the doctor should have told you this with explain that way you will know what to do with your health. Don't forget to tell doctor "Thanks for save my life". I continue to dig and look things up on Google.....findig out more info every day. Pull My Fucking Hair!
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Maybe... this is not the time for you to be worrying about this. For health reasons. Maybe... that's why nothing was said.
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This happens far more frequently than most people realize. In your case, because of your condition it would have been nice had they been a bit more sharing or at least offered to give you a copy of your records. AKA The Clit Whisperer.
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Wow and oh boy. It good things that you are alive! Also it good thing that you find out more detail information about your health which is good time to ask your doctor to see if those are true and explain it. I personal feel the doctor should have told you this with explain that way you will know what to do with your health. Don't forget to tell doctor "Thanks for save my life".
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And now you know why I wouldn't trust doctors -- even smart ones -- with a burnt-out match. They don't wantr to tell us poor uniniyiates anything, it might destroy their mystique. Pull My Fucking Hair!
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I find that horrifying! How much less work it would seem to be to me to just do things right. Keep accurate records, inform patients etc..... your hubby sounds lucky to make it through that. At this point I carry much of my medical information with me at all times. I have my meds list, valve replacement card, and pacemaker card. Pull My Fucking Hair!
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I'll second that. Sometimes it is things they consider inconsequential but include in the records for completeness sake. Other things they just don't want to spend time explaining since they feel there is nothing you can do about it. Sometimes it is because they are lazy. LOL Until we all carry around our own medical records with us all the time I think it is a good idea to know everything that is in our records in case we aren't near that care provider.  Pull My Fucking Hair!
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I think doctors don't tell patients everything because it can be a lot to take in and they don't want to spend a lot of time having to try and explain it all in terms that we can understand. I can understand that line of thinking but I if a patient is eager to know exactly what is happening to their bodies then I think the doctors should respect those wishes and tell them. I hope you are recovering well and feeling stronger hun. Take care of yourself. Linda xxx It does seem as though we are taking up too much of their time doesn't it? Maybe they should then have some other staff explain it, eh? I am the type that has to know EVERYTHING right down to the minute details. I like to know what I am up against so I make a game plan. Pull My Fucking Hair!
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i am sure you can take control of your life and be the person you want to be...regardless of your medical situation...i did..merry chrissie x0x Hope you have an excellent Chrostmas as well. Pull My Fucking Hair!
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12/12/2009 6:14 pm |
And now you know why I wouldn't trust doctors -- even smart ones -- with a burnt-out match. They don't wantr to tell us poor uniniyiates anything, it might destroy their mystique.
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I think doctors don't tell patients everything because it can be a lot to take in and they don't want to spend a lot of time having to try and explain it all in terms that we can understand. I can understand that line of thinking but I if a patient is eager to know exactly what is happening to their bodies then I think the doctors should respect those wishes and tell them. I hope you are recovering well and feeling stronger hun. Take care of yourself. Linda xxx    The perversity of the universe is unbounded.
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I think doctors don't tell patients everything because it can be a lot to take in and they don't want to spend a lot of time having to try and explain it all in terms that we can understand. I can understand that line of thinking but I if a patient is eager to know exactly what is happening to their bodies then I think the doctors should respect those wishes and tell them. I hope you are recovering well and feeling stronger hun. Take care of yourself. Linda xxx
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